Friday, May 6, 2011
ALL A BLUR
The past couple of weeks have seemed a bit crazy. If the doctors are right little Blakelee has been medicated enough to not even remember a thing about it!! She is doing much better than she was to start and we are glad she is doing as well as she is. She had her MRI on Tues May 3 and there was no sign of infection, but the docs wanted to talk to Mandi & Russell in person the next day about the findings :( Needless to say we spent a nerve racking night waiting to hear. All that worrying for nothing!!! The doctors said the pockets they had seen were only normal fluid, not puss and they saw one small vessel that had broke but was so small and not active so they didn't anticipate it would ever affect anything!! YEAH!!! She has been put on a gentler ventilator that only picks up the breaths that she doesn't breath. They have removed her arterial line out of her little forearm. No IV's except her pic line in her neck which is small. Back up to about 30 ml of milk every 3 hours. She is on some sedation & pain meds until they take the vent out then she will just have 1 more week of amoxicillin to finish out. At some point they will repeat a spinal tap to make sure infection is totally gone. She is doing remarkably well, I guess we just want her to be all better right now and she is taking her own sweet time ;) Now we just want Mandi to get feeling better. She went yesterday to the doctor and has bronchitis, she hasn't been able to go back to see Blakelee since Friday the 29th of April :'( The doctors hope by Sunday afternoon Mandi will be well enough to get back to see the babe & back to being the great mom she is!!!! Oh I forgot to mention last night in the night Blakelee decided she was tired of that old vent tube and pulled it clear out!!! Sadly she had to get a new one right back in . Tough little nut!!!
Tuesday, April 26, 2011
Lets Never Do This Again
Early Saturday the 23rd, Mandi & Russ recieved a call from the NICU. Blakelee had several A& Bs and she was fussy around midnight. Not acting like herself at all. They ran labs and performed a spinal tap, they knew something was up probably an infection. Around 8 am when Mandi and Russ got to the NICU they had intubated and put Blakelee on the oscillating ventilator, which she hadn't been on since she was first born, and at that time only for a couple of hours. Her body was in extreme distress. They were having a hard time controlling her heart rate and blood pressure. They immediately put in an arterial line in her hand so they could monitor her blood pressure heart rate accurately. She still had her pic line in her neck so they had already began a wide range of antibiotics. Her soft spot on her head was some swollen, that and other signs pointed to spinal meningitis! Spinal meningitis is a condition that causes swelling and inflamation in the lining of the brain and spinal cord. Hers they later determined was caused by the same strep b infection she had before. Today, April 26th she is still a very sick little girl, but this afternoon she is showing some improvement. Her 02 settings are much lower, she is showing signs of wanting to breath on her own. They have weaned her off her blood pressure medicine and she is tolerating that well. She is moving some even with the sedation they have been giving her for comfort and also to keep her calm and so she will never remember any of this. The doctors told us this morning, she isn't any worse so that was the good news for the day. They have done ultrasounds on all of her organs to see if there is a spot the infection could have seated itself and laid dormant after the first time. She will be on antibiotic treatment for atleast 21 days to make sure they clear her of the infection. They will repeat a spinal tap when she is feeling better to check on that infection. They attempted 2 times yesterday but her little body was dehydrated on the inside and swollen extremely on the outside as you will see if we can get a picture to post. Again we know she will get better from this and look forward to more good days ahead!!!
The Calm Before the Storm GOOD FRIDAY
Mandi & Russell had such a good day Friday the 22nd! They had been able to visit Blakelee and she was in an open crib! That has never happened before and that brought all kinds of exciting and fun things. Among those were dressing her in pajamas for the first time, holding her as long as they wanted, being able to basically take care of her by themselves! The only thing medically was really having a nasal canulla with oxygen flowing in and her feeding tube. They enjoyed that all day with only one time about 4:00 pm of her having a small A & B. It was the greatest day so far!!
Monday, April 11, 2011
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